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Application of Community-Based Participatory Research Methods to a Study of Complementary Medicine Interventions at End of Life

Yale Prevention Research Center, Yale School of Public Health, annaleila{at}scbglobal.net

Peter A. Selwyn, MD, MPH

Department of Family and Social Medicine at Montefiore Medical Center and Albert Einstein College of Medicine in the Bronx, New York

Ruth McCorkle, PhD, FAAN

Yale University, Center for Excellence in Chronic Illness Care

Susan Molde, RN, MSN

Leeway, Inc., New Haven, Connecticut

Lauren Liberti, MS

Yale-Griffin Prevention Research Center

David L. Katz, MD, MPH

Community-based participatory research (CBPR) principles can be successfully applied to the design and implementation of a complementary medicine study for adults with end-stage AIDS. The Yale Prevention Research Center partnered with Leeway, Inc., an AIDS-dedicated nursing facility, and other academic and clinical entities to conduct a randomized, controlled pilot trial of meditation and massage on quality of life at the end of life. Using CBPR principles, a methodology was developed that was scientifically rigorous, highly respectful, and acceptable to the 91% minority study population. Using continuous, open communication among all involved parties, challenges were satisfactorily addressed in a timely manner. Fifty-eight residents (97% of those eligible) with end-stage AIDS participated from November 2001 to September 2003. Subjects received 1-month interventions of meditation, massage, combined meditation and massage, or standard care. The study of quality-of-life in end-stage AIDS poses unique challenges well met by applying CBPR principles to an academic-community research partnership.

Key Words: AIDS • end of life • community-based participatory research • meditation • massage

Complementary Health Practice Review, Vol. 10, No. 2, 91-104 (2005)
DOI: 10.1177/1533210105279443


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